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Some thoughts on listening to patients

A couple weeks ago, before we started the second leg of our book tour promoting More Than Two, I went to the dentist. I had a couple of old-style silver amalgam fillings that were disintegrating (who, I wonder, was the first person to say "Silver and mercury! I know, let's put that in people's mouths!"?), so I decided to pay someone to take a small high-speed drill and root around in my mouth for a while.

Now, whenever I go to a new dental practitioner for the first time, there's a little speech I have to give. It's my mother's fault, really. She has some kind of genetic quirk, you see, that makes her for all intents and purposes immune to common local anesthetics in the Novocain/procaine/Lidocaine family. I appear to have inherited a genetic allele from her that gives me a high degree of resistance to these anesthetics, which is, as you might imagine, more than a little inconvenient when facing a trip to the dentist.

Anyway, the little speech. It hasn't varied much over the past few decades, and it goes something like this:

Before we get started, you should know that I am highly resistant to local anesthetics like Lidocaine. It's really, really hard to get me numb. It is probably going to take you a lot of work and multiple tries before I'm numb, and it wears off very quickly.

Now, every time I give this little speech--every single time, with only one exception ever (when I went to an oral surgeon to have an impacted wisdom tooth chiseled out with a backhoe, farm equipment and oil-drilling machinery), the result is always the same: "Oh, pish-posh. I won't have any trouble at all!"

And then the misery starts.

This last go-round, it took my dentist no fewer than six rounds of injections before I was finally ready to have the old filling carved out. Three rounds in, she jabs me with the needle and I'm all like "Ow!" and she's all like "you can still feel that?" and I'm all like "remember how I said I am resistant to local anesthetics?" and she was all like "wow, you weren't kidding!" and I was all like "I've had this conversation so. Many. Times. Before.", though that last part was in my head and not out loud, and...


So anyway, about that. It is perhaps not surprising that some folks might greet claims of being resistant to anesthetics with skepticism--genetic resistance is documented, but uncommon1 (thanks, Mom!)--but to just dismiss them outright, and especially for everyone in the profession to dismiss them outright, seems to me to speak to a systemic problem. And that systemic problem is, we train doctors to be good at all the parts of treating patients except listening to patients, which might be argued to be rather an important bit.

Pseudoscience, quackery ("this random thing cures cancer! Big Pharma doesn't want you to know, which is why you're finding out about it in a Facebook group!"), and snake oil "medicine" are huge, and deadly, industries. According to an NIH document reported on NBC, alternative "medicines" (which might reasonably be described as anything that hasn't been shown to work, since the name for things that have been shown to work is just "medicine"), is a $34 billion a year industry. That's a lot of herbs, acupuncture, and magic water full of mystical energy vibrations but nothing else.

There are lots of reasons why. Anti-intellectualism is a big one, and the fact that anti-intellectualism tends to be joined at the hip to conspiracy nuttery doesn't help. Rejection of science, distrust of "big corporations" (except the big corporations marketing herbal supplements, naturally), superstition, wishful thinking...all those things play a part.

But some of the problem is, I think, self-inflicted. Too many medical practitioners are at best dismissive of, and at worst hostile to, their patients' own self-reported information. There are probably a bunch of reasons for that, from fear of drug-seeking behaviors (and the spectacular fuckedupedness of a medical establishment that doesn't take pain management seriously is worthy of a blog post of its own!) to simple arrogance.

The new flavor of trendy pseudoscientific bullshit is the claim that cavities can be "cured" by minerals and "oil detoxification," and unsurprisingly, this new brand of bullshit smells pretty much the same as all the old brands.

But dammit, I wish my dentist would listen when I say local anesthetics don't work very well on me, instead of having to find out through painful (to me, that is, not to her) experience.

1 According to Wikipedia, the genetic allele associated with lidocaine resistance is linked to ADHD as well. Go figure.


( 37 comments — Leave a comment )
(Deleted comment)
Sep. 24th, 2014 04:16 pm (UTC)
FYI, in my third long comment to this post (er, I may have a lot to say on the subject), I have a list of which local anesthetics *have* been effective on my daughter and I (we both have lidocaine insensitivity), and it may be helpful for you to ask for an alternative for future procedures.

For general surgical purposes, Marcaine is the most common and most effective. For dental, Benzocaine gel provides a degree of surface numbing, and Articaine/Septocaine shots are actually very effective and long-lasting.

And, yes -- I have a lifetime's experience of dealing with how doctors treat pain management in women, and it's utterly infuriating and dispiriting.

(I have a good treatment team *now*, but that's after a lot of trial and error -- and I also have a *diagnosis* which doctors can understand, even though it's a rare disorder and many doctors have never seen it before. Without the diagnosis, I'd almost certainly be treated as a hypochondriac, because I have systemic issues that result in a lot of different disease manifestations.)

Before I was diagnosed, I *was* treated suspiciously by doctors, even though I was stringently anti-opiates at the time.

And many people take 10+ years to get a correct diagnosis with this disease, so I've seen other people with Ehlers-Danlos treated BRUTALLY by health personnel who don't understand the patient's symptoms.

I have friends who have experienced things like doctors forcibly dislocating their hips to "prove" they don't need a brace. Then, of course, the doctor decides they must have congenital hip dysplasia, rather than a connective-tissue disorder -- even though the patient is telling them that they experience similar subluxations and dislocations in every OTHER joint in their body.

And it's a disease that -- surprise! -- is about 80% female on its face. (It's actually not a sex-linked mutation, but female hormones can have an enormous effect on its expression -- my father and brother had relatively mild symptoms, whereas my grandmother, myself, and my daughter have severe symptoms. You usually develop new symptoms or get worse during puberty, pregnancy, and -- oddly enough -- menopause.)

Many men are never diagnosed, unless they have an unusually severe case (it's possible that they inherited a double dose from both parents -- they're still trying to locate the exact mutation that causes Type III/Hypermobility Type, and I suspect that they're actually going to discover that it's several similar subtypes, each with a separate familial mutation.) My brother wouldn't have been, if we hadn't gotten the diagnosis and then he admitted to having symptoms -- but he was a sports star and a gymnast, because he got the extra flexibility without the tissue friability/fragility.

So, yes -- women's pain is often dismissed, and if a woman comes in with a cluster of disparate, apparently-unrelated symptoms, a doctor is more likely to treat her as a hypochondriac rather than look up the symptoms to realize that she is suffering from a syndrome with a variety of expressions.

-- A <3
(no subject) - xaotica - Sep. 26th, 2014 04:53 am (UTC) - Expand
(no subject) - nightshade1972 - Oct. 10th, 2014 01:07 am (UTC) - Expand
Sep. 23rd, 2014 02:29 am (UTC)
Had to leave a comment as one of those medical professionals. Unfortunately after you have practiced for about a year, you learn that people, in general, will lie to you to get anything they want, which in a lot of times is more potent pain medicine. I caught three lies this weekend and today (one each day). This was a slow weekend. And that's not including all the calls I get every day about "when is my Xanax/Soma/Ambien/Hydrocodone due to be filled?" There's about 8 to 10 of those calls per DAY.

So after you have dealt with the person going to Zimbabwe for 2 months who needs her pain medicine filled early AGAIN, and the person going to the airport RIGHT NOW and they need their pain med RIGHT NOW, and the person wanting to make sure that you have the four bar Xanax in stock and not the round ones because only the four-bars work for you (and incidentally sell for twice the price on the street) it is very easy to hear what a patient says, but not actually LISTEN to what the patients. Even if the request is for a non-pain/non-controlled product, there is still a part in the back of your mind going "well what do they want next?"

I can certainly understand your frustration, but there are a lot of other systemic problems that are contributing to your problem. I hope you can find a dentist who will listen to you.
Sep. 23rd, 2014 12:03 pm (UTC)
It is just as frustrating as being treated like and idiot by tech support simply because 75% of their calls are from idiots.
I can understand being worried about pain pills shopping etc. but I get doctors questioning me on when I say my last menstrual period is. Yes I'm sure, I keep it written down for god's sake. You want me to get out my calendar so you can look?
(no subject) - sylphon - Sep. 23rd, 2014 12:47 pm (UTC) - Expand
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Sep. 23rd, 2014 02:29 am (UTC)
Having a few friends with abnormal reactions to pain meds, my first guess is that the dentist thinks you're angling for opiates or other strong addictive medications. Even when it's already in their charts, they generally have to go through the "No, still not working, pain is in the 8-10 range" each time they're hospitalized.
Sep. 24th, 2014 04:55 pm (UTC)
It's so frustrating. With a local anesthetic, I'm not looking to get high -- I'm looking to get numb!!

(Actually, for genuine chronic-pain patients, opiates won't cause euphoria unless they're a really high dose -- the opioid receptors are being used to block severe pain, which means that nothing is left over to cause a euphoric, "high" reaction. Non-drug-abusers rarely report a euphoric reaction to opiates, and when they are given a pain stimulus, they report fewer side effects and are less impaired than people who are given opiates when not in pain.)

That's not the world's newest study, but it's written in accessible language, and the results have been duplicated over the years. There does seem to be a genetic susceptibility to addictive behavior, but I've seen studies that show only 2% of people given opiates for severe pain are going to become addicted.

(If they're on a daily dose, they will become *habituated*, just like an antidepressant or a drug like Lyrica, you can't discontinue it cold-turkey without causing withdrawal, but habituation and the need for step-down doesn't mean that the patient is an addict, merely that they shouldn't stop their meds abruptly.)

Some studies have shown that when doctors prescribe high doses of opioids after an injury or surgery, but then "cut the patient off" and expect them to stop cold-turkey, they can actually *create* addicts -- because the patient goes into withdrawal, becomes desperate to relieve the symptoms, and may illicitly acquire opiates to deal with their symptoms, producing a craving for drugs and creating drug-seeking behavior. If the doctor had simply stepped-down the dosage gradually, the patient would have a longer but less severe withdrawal period, and the symptoms wouldn't be anywhere near as bad.

It's recommended that doctors step-down patients on opiates, but I've seen story after story of people who became addicted after a traumatic injury, because of this practice in particular. (Again, addiction is very rare, when opiates are being prescribed *to that patient* for a legitimate medical reason -- most addicts are taking someone else's prescription. Overdose death statistics bear this out -- 60% of opiate-overdose deaths are from people who haven't had a prescription for opiates in the past 6 months.)

So, yeah -- lidocaine insensitivity, and asking for an alternate local anesthetic, does not constitute drug-seeking behavior (it's not like you can get high off of Marcaine or Septocaine!)

BTW, your friends should get Cytochrome P450 genetic testing done, if they have access to a geneticist -- CP450 can affect drug uptake dramatically, and if they're shown to be . . . IIRC, the term is close to "super-processors" (whose bodies process pain medication much more rapidly than normal, so that their analgesic effect wears off sooner), their doctors may change their meds accordingly. It's good to document this stuff, because you WILL be treated like a drug-seeker if you're post-surgery and asking for more IV pain meds before they're due.

-- A <3
(no subject) - ashbet - Sep. 24th, 2014 05:08 pm (UTC) - Expand
Sep. 23rd, 2014 05:13 am (UTC)
>>>the spectacular fuckedupedness of a medical establishment that doesn't take pain management seriously

Yes. Fuck yes.

My daughter and I are both lidocaine-insensitive, because we're among the lucky population who won the genetic lottery and ended up with Ehlers-Danlos Syndrome. Many people with EDS are lidocaine-insensitive, and it's actually a diagnostic trait that doctors are supposed to watch out for. (Most people with lidocaine insensitivity don't have EDS -- but if it appears in conjunction with joint hypermobility, thin/translucent/stretchy skin, and a history of unusual injuries, it *should* signal a doctor to do an EDS screening.)

You're probably lidocaine-insensitive because of a different mutation -- redheads and blondes with light eyes, fair skin, and a history of Irish or Scandinavian descent are at elevated risk for lidocaine insensitivity. My former metamour is a redhead with blue eyes, and has the same issue (she's not completely insensitive, but she's very resistant.) As far as my doctors have been able to determine, I'm completely insensitive (heh, I hear that all the time! /smartass), and you can keep giving me shots forever, and it's not going to take.)

I was told repeatedly by doctors when I was younger (through my late 20's) that I should "quit complaining" and I obviously "couldn't feel anything" because they'd given me a "double dose of lidocaine" for various local-anesthetic surgeries. I was told that I had a "low pain threshold."

My "low pain threshold" actually turned out to be, as another doctor described, "hardcore" -- because I'd had all those surgical procedures without ANY numbing or pain relief.

I wish that just one of those doctors had said "Hmm, if you're still feeling everything with the lidocaine and can DESCRIBE WHAT I'M DOING TO YOU WITH YOUR EYES CLOSED, maybe the anesthetic isn't working and we should try something else."

Turns out that we can use some other members of the -caine family just fine -- Marcaine, Carbocaine, etc. Now that we know this, we always tell doctors in advance -- but I almost had to physically remove the hand of a doctor who was about to do a thyroid biopsy on my daughter (and who was verbally professing that there was no such thing as lidocaine insensitivity), because he was holding a great big needle up to her neck, and there was no way I was going to let him do that with no pain relief.

Doctors who listen, and doctors who are educated about EDS, and/or lidocaine insensitivity in general, are worth more than rubies. It's very frustrating that so few doctors genuinely listen to their patients, rather than filling in a pre-determined narrative and ignoring our actual words if they don't match up with the preconception.

(cont'd - LJ comment character limit hates my rants)
Sep. 23rd, 2014 05:15 am (UTC)
And don't even get me started on the current War on Pain Patients (er, "War on Drugs," although the end result is the same.) The pendulum has swung from "Pill mills! OxyContin for everyone!" to a level of anti-opioid hysteria that has led to -- JUST IN MY CIRCLE OF FRIENDS, IN THE PAST TWO MONTHS:

[1] A patient with a six-inch liver tumor being incorrectly red-flagged by a pharmacist as drug-seeking (which automatically put her on a tri-state database), because the pharmacist decided that she MUST be "drug-seeking," because she'd received two previous (small/temporary) pain-medication prescriptions from doctors in two states. (Of course, they couldn't just call the prescribing doctor and ask if he was aware that the patient had been seen at Johns Hopkins and Georgetown . . . that would be *too logical.*) Of course, she MUST be drug-seeking, because who ever goes to two major teaching hospitals in order to get second opinions on life-threatening liver surgery, right?

It took her fourteen days and eleven pharmacies in multiple chains before she could fill the prescription (once she was supposedly un-red-flagged, the pharmacies kept telling her that they didn't have the right dosage/quantity of medication in stock, but they couldn't tell her over the phone, she had to come in person to show the prescription and ask if they had the medication (I suppose the reasoning is to keep them from being held up at gunpoint for having a large supply of painkillers . . . but, seriously, is the answer to ask a seriously ill patient with a *tumor that is palpable from the outside* to drive around from pharmacy to pharmacy until she could get her prescription filled? All the while in agonizing pain? FFS.)

The only reason she wasn't in the hospital, getting pain meds via IV, is that she has to lose as much weight as possible before the surgery, because it will improve her chances of survival (they have to remove about half of her liver.) So, the surgery is in two months, but in the meanwhile, she's on a liquid diet, and she's in a LOT of pain.

[2] A dear friend's mother has cancer, and is going to be undergoing chemotherapy and radiation soon, but they have to build her strength back up first (she came very close to death after a post-biopsy infection.) When she was transferred from Intensive Care to a skilled nursing facility, they forgot to send her pain meds with her. When they arrived at the facility, her family was told that they were unable to provide the medication. A family member had to drive back to the hospital, only to be given a script rather than the actual meds -- and, at that point, all the local pharmacies were closed.

This caused an elderly, medically-fragile woman to have to go overnight without her pain medication, when they'd been giving her IV morphine in the hospital. It was an ugly and needlessly-painful night for her, particularly since THE HOSPITAL ACKNOWLEDGED ITS ERROR, both to the family and the skilled nursing facility, but said that they could only give out a prescription rather than provide the medication directly.

(cont'd again)
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(Deleted comment)
Sep. 24th, 2014 06:45 pm (UTC)
Yep. Women, especially fat middle-aged women (*points at self*), are often undertreated for pain, or told that it's "all in our heads," when we have a physical problem that requires medical intervention.

You may be interested in this recent report -- it's less rigorous than a study, but it's fairly staggering in its results -- I'd love to see a full-on research team tackle the same questions, with a control group in order to get the most accurate findings.


I'm sorry that you've experienced this kind of dismissiveness, too :/

-- A <3
Sep. 23rd, 2014 12:45 pm (UTC)
I have a pretty major lidocaine resistance too, It takes a lot to even start numbing and wears off quickly (including mid-procedures) and the dentists and hygienists never believe me. Always so certain they are right.

I even found this great office I've been going to for the past few years and they too didn't believe me the first time, though they sorta believe me now (though they still underestimate the needed amounts). Nice people, very compassionate and thoughtful and yet the first few visits they had that resistance as well, so it isn't even just the ones that don't care, it definitely points toward a systemic issue in the industry.
Sep. 24th, 2014 04:04 pm (UTC)
Before your next dentist's appointment, ask them to please make sure to get Articaine (also called Septocaine, which is Articaine + Epinephrine, to reduce bleeding) in stock.

My daughter and I are lidocaine-insensitive, and we've had good dental results with Benzocaine cream for local numbing (before the shots), and Articaine shots for the actual procedures.

It's not an unusual medication to ask for -- many dentists have switched to Septocaine over Novocaine, because it's more effective in a larger number of patients -- so you hopefully shouldn't get a hard time from them.

It's possible that we have a different sodium-channel mutation than you do, but it's certainly worth a try -- and could save you a lot of pain.

Good luck!

-- A <3
Sep. 25th, 2014 02:08 pm (UTC)
Doctor's note?
I wonder if it might help to have an actual written letter from a medical professional detailing your type of anaesthetic resistance, how it works, and what alternative methods of pain relief might be more effective?

An awful lot of people do exaggerate their pain-relief needs, so I can certainly understand how doctors might automatically dismiss lay people making claims of this. (If I've learned one thing from decades of working in customer service type jobs, it's that *everybody* thinks their situation is unique and special, whether it is or not).

However someone who has actually gone to the trouble of getting their condition documented and is able to provide paperwork is usually in a better position.
Sep. 25th, 2014 06:15 pm (UTC)
*nods* Agreed -- although it's not as easy as you might think.

(I have literally asked my doctors to write LIDOCAINE INSENSITIVE - MARCAINE ONLY on the front of my chart . . . and yet, the last time I had a sedation procedure, just as I was losing consciousness, I heard the anesthetist say that he was putting lidocaine in my IV. I had to try to speak through the mask to say "NO LIDOCAINE!" I'm really fortunate that it's an insensitivity, not an actual allergy, or they probably would have killed me on the spot.)

Needless to say, I had a word with them after the procedure -- it's a damn good thing that it was an endoscopy and not an actual surgery, because I would have woken up feeling everything they'd done.

It's much harder to achieve analgesia after the fact, and it normally takes more medication and is harder on the patient, rather than numbing or giving painkilling drugs pre-procedure.

Honestly, I'm not sure which, if any, of my doctors would be willing to produce a letter of that type. I'm not aware of a routine test for lidocaine insensitivity, and many doctors are unwilling to write letters of testimony for something that they haven't proven themselves. They can observe an absence of response to lidocaine, but I'm not sure who would be able/willing to *diagnose* it.

It's a good thing to have on a MedicAlert type bracelet, but many of us don't wear jewelry on a daily basis, and that's most helpful in an emergency than it is for a routine procedure like dentistry. (Also, MedicAlert bracelets can be customized to say pretty much anything, so it's not the same as a doctor's letter.

Having "lidocaine-insensitive" in my notes is useful, but I still have been challenged by doctors about it, and the incident with my daughter and the thyroid biopsy consisted of a medical professional waving a large-bore needle by her neck while authoritatively telling us that (a) there is no such thing as lidocaine insensitivity, and (b) that a procedure done in the same hospital the previous week had been done under lidocaine anesthesia.

(Since we had personally spoken with the doctor and anesthesiologist in that case, and had been SHOWN THE VIAL OF MARCAINE, I told him to call the surgeon who had done the bone-marrow biopsy to verify. He refused, saying that it said "lidocaine" on the records. I told him that it was likely that the record had been prepared as a boilerplate biopsy statement, and that whoever was dictating had probably forgotten to switch the anesthetic name, since the discussion with the doctor/anesthesiologist happened directly before the surgery, so anything prepared in advance would have had the "standard" anesthesia info.)

Getting a doctor's letter, if you can, is a good idea -- I'm just not sure how practical it would be.

(I've seriously considered tattooing it on the inside of my wrist -- in case of emergency, I'd like to believe that I would receive adequate pain treatment during the time that I was unable to communicate.)

The frustrating part of the belief that "an awful lot of people do exaggerate their pain-relief needs" is that we *know*, through multiple studies, that a lot of pain is undertreated. (And some people who exaggerate their claims of pain are doing so in order to have "extra" medication for the times when pain goes untreated -- in the US, access to healthcare isn't a given, and people are likely to hang onto an extra ten Percocet for the next time they hurt their back and can't go to the doctor. I'm not saying that this is wise or admirable, but it's a major issue here.) Which is not to say that there aren't addicts or people diverting drugs for sale . . . but it's something to consider.

Asking a doctor to use a different local anesthetic (which has no potential for euphoria, diversion, or misuse) isn't the same as asking for morphine for a headache -- I know that some people exaggerate or want the "big guns" and recognizable names, but a patient saying that they're lidocaine/novocaine-insensitive and need a different local is unlikely to be exaggerating or lying to the doctor -- and yet, they're often treated as if they are.

-- A <3
(no subject) - sammason - Oct. 9th, 2014 09:23 am (UTC) - Expand
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Sep. 30th, 2014 04:27 am (UTC)
i wonder if this post has your high score for comments, we all have something to say about how doctors don't listen. i also have a problem with the local anesthetic in dentists offices and no matter how many times i say it they still give me the wrong meds the first time and then they get to watch me hyperventilate and black out and then they're like "oh, epinephrine eh? i told you that wasn't an allergy" no fun, anesthetics are pretty fuckin important.
Oct. 9th, 2014 05:21 pm (UTC)
Ugh, my sympathies :(

One of my more minor (!) EDS-related issues is a cardiac disorder (Postural Orthostatic Tachycardia Syndrome -- my daughter has it badly enough that she developed cardiomyopathy at age 20.)

While I do tell doctors/nurses/dentists that I only want epinephrine-containing products if bleeding is a potential *emergency*, I've had anesthetics with included epinephrine given before, without warning . . . and *oh* do the medical professionals flip out when that, predictably, makes my heart start flopping around like an epileptic fish >:P

(I agree, the issue of "Patient clearly states a problem up-front, doctors don't believe it until they see it, lather, rinse, repeat" is a serious downside to the medical profession -- I understand that many doctors assume that patients are wrong or exaggerating, but that kind of attitude is going to wind up killing people.)

-- A <3
Oct. 5th, 2014 12:12 pm (UTC)
thanks to electronic medical records, things are about to get a lot worse for patients
I read all the comments. Now I feel less alone. Thank you all!

Latest ebola scare in Dallas is at least bringing up that electronic records hinder more than help. But I know that people like to believe anything a computer says so if the med staffer is reading a screen that contradicts patient, patient will be dissed even more.

Thanks to lawyer penpals tied to "right to die at home and decline medically futile stuff" I'm changing my advance directive and the emergency intel in my wallet that's now stapled closed around my Blue Cross card so maybe this time EMS will actually read the damn thing. But it includes that any procedure or drug that I did not consent to or my medical POA did not consent to constitutes assault and I will be pressing charges. Why do nurses get to inflict misery and not be held accountable? And I will never again swallow things in a paper cup handed me. If I didn't see the pharmacist open the bottle, which I will look at myself, forget it.

-- Jan / slitheryj at gee male
Oct. 10th, 2014 01:39 am (UTC)
My mother has very tiny veins, very close to the surface of her skin. She's nearly 68, and they still have to use a pediatric butterfly needle on her when they draw blood, otherwise she gets a huge bruise. Maybe 20 yrs ago she had to go in for some routine bloodwork. She told the tech about the butterfly needle, the tech readily complied, and she left with almost no bruise. They called her back a week later--something had gone wrong and they needed to redo the bloodwork. She had a different tech for the second round, who literally rolled her eyes at my mother. The tech proceeded to use the standard sized needle, and my mother ended up with a huge, raised, eggplant purple, softball-sized bruise on her inner arm that didn't go away fully for a month.
Jul. 6th, 2016 01:11 pm (UTC)
Just browsing through your old posts so seriously out of date....

I don't have problems with pain medication, but I do have anxiety and serious problems over loss of control thanks to several things in my childhood. Sedatives and general anaesthetics terrify me to the point of irrationality and leave me with flashbacks for a while afterwards, so I want to know they're necessary and understand why before I agree to them, and do what I can to feel like I'm in control of the situation.

When I had problems with my wisdom tooth, my dentist refused to listen when I explained this. He tried to push me to taking a lot of sedatives to keep me calm to make things easier for him 'because he didn't know if I would panic or not', despite my tooth being near the surface and not impacted. When I asked what I should do if I wanted him to stop he said he would not stop as it was a bad idea; I said I knew that but while I was unlikely to encounter a situation that led to me wanting him to stop, if I did so, he should stop immediately even if it was a bad idea; my body, my decision. He refused to agree to that, and said he would not remove my tooth unless I agreed to a sedative. Of course the more he tried to push sedatives the more I got anxious and alarmed, and the more insistent he became. I ended up walking out.

I found another dentist who actually listened to me, looked at the X-ray and said a local alone should be fine if that's what I wanted. We arranged that I would listen to my music on headphones to stay calm, and agreed on some hand signals so I could ask him to pause or signal for more novocaine if I needed it. I stayed calm and didn't even get through the first track before he had finished removing the tooth. I was fine after the surgery and recovered well and quickly, no problems.

I trusted the first dentist to know his stuff. I no longer trust him to listen to me and respect me or my right to informed consent.
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